Uncategorized
-
The article describes participation in “The Curiosity Collective,” a project guided by neuroscientist Anne-Laure Le Cunff. Over four weeks, 300 members engaged in goal-setting experiments based on her principles from the upcoming book “Tiny Experiments.” Participants focused on achievable goals, learning from experiences to improve personal habits and understanding of neuroscience.
-
Is anaesthesia a problem for someone with HSP [hereditary Spastic Paraplegia]? This was a question I needed an answer to when I was told that I may need surgery for the spinal cyst I have. Blank looks, eye-rolls or shrugs were about the sum of it. So, I turned to Dr Google and found a
-
An ill-fitting box ‘…I put the word “diagnosis” in quotes because I have not yet seen that case in which a “diagnosis” led to a “cure”, or in fact to any outcome other than a confirmed, and therefore an enforced, debility.’ – Joan Didion, Blue Nights. I spent decades wanting a diagnosis, a meaning, a
-
Thanks for joining me! I’m an author (I write books as Philippa Faulks), editor, researcher, and advocate for rare diseases, of which I have two. I’ll be adding new posts regularly in all categories and I hope I can be a useful guide on your journey. Good company in a journey makes the way seem
Philippa Lee 